As I come to the end of another year and another one waits on the horizon, it’s time to look back and forward all in one post. Cool, right? Yeah, I didn’t think so neither. So let’s get on to it.
2017 has been a great year. Considering how bittersweet 2016 was, it’s been a big improvement. As I moved into adulthood in January, the amount of help and support from my local Council changed dramatically. I went from nothing to something all because I didn’t tick the ‘complex medical needs’ that child services didn’t have. As soon as I turned 18, I qualified for everything under adult care. Since then, a conversion of our old outhouse to a little flat for myself, with a wet room, is underway. It’s on course to be finished early next year :).
I’ve also been able to be out and about on a weekly basis, with a one-on-one carer. I even managed to get a certificate in independent cooking. I am also a regular blogger for a local community organisation that helps people with special needs experience life, work, and different activities in the countryside every week.
Arthur-wise, it’s been a mixed bag. I graduated to “big boy medication” called sulfasalazine, which has been a success. I also started using a walking stick this year, which has been a great help when I’m out and about. It hasn’t all been great though, with some particularly nasty flare-ups, both times in my knees. It was debilitating, but every year can’t be without it’s rough edges.
And now it’s time to look forward to 2018, the year I will have a little flat to call my own, a year I will have my own fully adjustable bed, a year where my independence grows yet again. But it won’t be without Arthur troubling me, although that’s no surprise.
So, here’s to 2018!
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(Any opinions expressed in Charlie’s blog are not necessarily shared by Arthur’s Place. Nothing that you read in Charlie’s blog constitutes medical advice.)